By studying the survival state of, and social influence factors on, discharged patients with pulmonary arterial hypertension (PAH), to evaluate patients’ health condition and describe the disease regularities of pulmonary arterial hypertension. To gain a more overall description of outcome of pulmonary arterial hypertension and supply scientific basis of prevention and treatments of the disease.To formulate management strategies and educational measures improving prognosis from the perspective of sociology and medical science.
Peking University Shenzhen hospital was key sampled in Peking University Health Science Center (PKUHSC).Some discharged patients diagnosed with PAH during the period of 2005-2015 in its electronic medical record system (EMRS) were randomly sampled.It was a cross-sectional study by the method of telephone interview which was carried out from August of 2016 to May of 2017, and the SPSS20.0 was used to form database,analyze all parameters relevant to living condition and evaluate social factors influencing prognosis.
- 74 cases were randomly sampled and interviewed from 198 PAH patients, including 68 cases alive accounting for 92% and 61 cases validly interviewed accounting for 82.43％.The age of all cases dominated by women averaged 45.5.The major patients in all had primary diseases of congenital heart diseases which accounted for 70.49% and depended mainly on surgery won better prognosis after operation which accounted for 62.07%. A large number of patients were in good health.
- Factors affecting prognosis consisted of financial condition, families supporting, social assistance, disease education, medical level and patients compliance. Of all the factors, the lack of social assistance channel, popularity of disease education and patients compliance were more common.
- The limited medical consultation was the main approach for PAH patients to gain professional knowledge.
Multiple social factors can affect the prognosis of PAH patients. The medical level, social assistance and disease propaganda may be the main influencing factors on follow-up compliance and outcome of patients discharged. Long-term standard treatment, follow-up and satisfied medical welfare will contribute to reliving symptoms and improving survival conditions and prognosis. The government needs to increase additional appropriation and researches supporting medical insurance policy,education and skills on pulmonary arterial hypertension.
Pulmonary arterial hypertension; Survival status; Health education; Cross-sectional study.