From Data to Action: Exploring the PHGPS Data Dashboard for Patient Associations

13 August 2026
16:00 BST

Join the PVRI PHGPS Task Force, PHA USA, and PHA Europe to explore how patient associations can use the PHGPS Data Dashboard to support local advocacy, education, and planning.

The Pulmonary Hypertension Global Patient Survey (PHGPS) was shaped by patients, carers and patient associations around the world. This session is an opportunity to share what has happened since the first phase and show how the data can now be used.

We’ll introduce the PHGPS Data Dashboard and demonstrate how patient associations can explore and use the data in their own setting. We'll also look ahead to PHGPS Round 2. You’ll have the opportunity to reflect on what else patient associations need from the survey, share feedback, and find out how you can support future dissemination, translations, and survey development.

What will be covered?
In this webinar, we’ll explore:

• the purpose of PHGPS and progress from the first phase
• how patient associations contributed to PHGPS Round 1
• the impact of the survey so far, including published outputs and the 10 calls to action
• how to access and use the PHGPS Data Dashboard
• practical ways patient associations can use the data locally
• opportunities to shape and support PHGPS Round 2 

This webinar is designed mainly for patient associations, but everyone with an interest in PHGPS is welcome, including patients, carers, clinicians, industry partners, pharma, researchers, and the wider PH community.

Register now