Our new PHGPS Data Dashboard

29 July 2026

Our new interactive dashboard is making findings from the Pulmonary Hypertension Global Patient Survey (PHGPS) easier to explore, understand, and use.

Nearly 4,000 patients and carers across 90 countries took part in Phase 1 of PHGPS. They shared their experiences of diagnosis, treatment, access to care, daily life, work, emotional wellbeing, research, and support.

Those insights are now available through our PHGPS Data Dashboard.
 

Explore the experiences behind the data

Our dashboard gives patients, carers, patient associations, clinicians, researchers, advocates, and decision-makers an accessible overview of key findings from the survey.

Users can filter results by:

  • region
  • diagnosis classification
  • respondent type
  • gender

This makes it easier to explore the issues most relevant to different communities and settings.

The dashboard covers diagnosis, treatment, access to care, daily living, work and social life, and emotional wellbeing. It can help users identify gaps, recognise shared challenges, and better understand what living with PH is really like around the world.
Explore our PHGPS Data Dashboard

For the best experience, please view the dashboard on a laptop or desktop computer.

 

Join our practical webinar

Patient associations are also invited to a dedicated webinar on how to use our dashboard in their own work.

From Data to Action: Exploring the PHGPS Data Dashboard for Patient Associations
13 August 2026
16:00 BST

Hosted by the PVRI PHGPS Task Force, PHA USA, and PHA Europe, the session will explore:

  • how to access and navigate our dashboard
  • practical ways to use the data for advocacy, education, and planning
  • the impact of PHGPS so far
  • opportunities to shape and support PHGPS Phase 2

The webinar is designed mainly for patient associations, but patients, carers, clinicians, researchers, industry partners, and anyone interested in PHGPS are welcome.
Register for the webinar


Planning is now underway for PHGPS Phase 2. The next phase will build on what has already been learnt, widen representation, and help the global PH community track progress over time.

By continuing to listen to patients and carers, PHGPS can help ensure that future research, care, advocacy, and policy reflect the experiences and priorities of the people most affected by PH.

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