Unlocking insights - the potential of the PH GPS

On 27 September 2024, phase 1 of the Pulmonary Hypertension Global Patient Survey (PH GPS) closed. The survey was first launched in October 2023 to help clinicians better understand the impacts of PH on patients.

We are excited about the insights into the lived experiences of PH patients worldwide that will be unlocked with the PH GPS data. Nearly 4,000 PH patients and caregivers from over 85 countries participated in the first phase of the survey. Experts are currently analysing the data, and papers are being prepared for publication.

This new data will expand our knowledge and understanding of PH symptoms, treatments, and patients’ quality of life worldwide. The findings have the potential to improve patient care, guide future research and help us address unmet needs. They could play a key role in shaping healthcare policies and enhancing clinical practices, ultimately improving outcomes for diverse patient populations.

If you're interested in the PH GPS data, we would love to hear from you. As a first step, please refer to our Data Access Policy.

Data Access Policy 

Thank you to the panel of PH specialists and patient group advocates from Pulmonary Hypertension Associations of Europe, United States, United Kingdom and South Africa who helped write the survey. It was coordinated by PVRI’s Patient Engagement & Empowerment Workstream and endorsed by ERN-Lung. We particularly thank the PH patients and carers for their participation.