This Task Force is open to PH clinicians and academics from across the Eastern Mediterranean and Gulf states.
In February 2024, SAPH hosted their 17th Annual Conference in Riyadh – a lively and engaging international meeting that embraced patient organisations and guests from across Europe, the US and as far away as South Korea.
Leaders
Abdullah Al Dalaan, King Faisal Specialist Hospital and Research Centre
Hassan Alorainy, King Faisal Specialist Hospital and Research Centre
Our Regional Task Forces don't yet have global coverage. If you're interested in starting one, please contact us.
Interested in accessing global data on PH patient experience? Almost 4,000 patients and carers across 85 countries completed Phase 1 of our PH Global Patient Survey (PH GPS). Questions across all PH groups included diagnostic tests & timelines, genetic testing, treatments, financial burdens, hospital visits, research participation, quality of life, telemedicine, patient-reported outcome measures, and self-monitoring with digital technology. The findings have the potential to improve patient care, guide future research and help us address unmet needs.
