harmonise imaging protocols to improve international clinical and research collaboration
help to develop a network of international PH Imaging centres to allow dissemination of best practice
include clinicians, radiologists, imaging scientists and industry partners, to facilitate a step change in how we use imaging and translate this into clinical practice
disseminate current evidence for the use of imaging in the assessment of PVD in formats that will be accessible and educational
The group is currently working on a comprehensive position statement for publication to include:
An overview of the current PH landscape and the potential role of imaging
A review of established and emerging imaging modalities with respect to their use in the assessment of pulmonary vascular disease
Clinical challenges, radiology controversies, technical aspects, and developing networks of imaging excellence and sharing expertise
Diagnostic algorithms including state-of-the-art approaches to imaging and algorithms based on image availability.
Creating this position statement brings together experts in the field of imaging and PH, and we hope it will act as a springboard for further collaborations. If you are interested in joining this Task Force, please get in touch.
Leaders
David Kiely, University of Sheffield
David Levin, Mayo Clinic College of Medicine
Andy Swift, University of Sheffield
Rebecca Vanderpool, University of Arizona College of Medicine
Our Regional Task Forces don't yet have global coverage. If you're interested in starting one, please contact us.
Interested in accessing global data on PH patient experience? Almost 4,000 patients and carers across 85 countries completed Phase 1 of our PH Global Patient Survey (PH GPS). Questions across all PH groups included diagnostic tests & timelines, genetic testing, treatments, financial burdens, hospital visits, research participation, quality of life, telemedicine, patient-reported outcome measures, and self-monitoring with digital technology. The findings have the potential to improve patient care, guide future research and help us address unmet needs.
