Access to Care Workstream

Aims & Goals

The Access to Care Workstream aims to:

• identify and address knowledge gaps and contextual variations in PH care within and between countries/regions around the world
• propose strategies to impove global access to care for PH education, diagnosis, management, and treatment

Key Goals:

• The Access to Care survey which was launched in April 2023 and aimed to identify and map inequities in access to PH care. Over 150 PH centres responded, providing data on the local challenges healthcare professionals face in diagnosing and treating PH patients. The group worked with PVRI’s Regional Task Forces to capture more data from low- and middle-income countries. The initial survey results were presented at PVRI 2024 Congress by Alexander Kantorovich, United Therapeutics Corporation

  Watch recording here

• Based on the survey findings, the workstream are now exploring a pilot program addressing resource availability needed to help the practice of PH clinicians worldwide

Publications

• Prisco, S. Z., Kantorovich, A., Liu, Y., Sahay, S., Bernardo, R., et al. (2026) ‘Global resource disparities between pulmonary hypertension centers: Results from the international survey by the PVRI IDDI Access to Care Workstream’. Pulmonary Circulation, 16(1), e70229

If you’re interested in joining this Workstream and helping to shape strategies that enhance global access to PH care, please get in touch.