Access to Care Workstream

Aims & Goals

The Access to Care Workstream aims to:

• identify and address knowledge gaps and contextual variations in PH care within and between countries/regions around the world
• propose strategies to improve global access to care for PH education, diagnosis, management, and treatment

Key Goals:

• The Access to Care survey which was launched in April 2023 and aimed to identify and map inequities in access to PH care. Over 150 PH centres responded, providing data on the local challenges healthcare professionals face in diagnosing and treating PH patients. The group worked with PVRI’s Regional Task Forces to capture more data from low- and middle-income countries. The initial survey results were presented at PVRI 2024 Congress, A global assessment of access to care for patients with PH by Alexander Kantorovich, United Therapeutics Corporation
• The survey findings informed the development of Global PH Consult, a pilot service designed to improve access to specialist PH case discussion and shared learning worldwide.

Global PH Consult

Building on findings from the Access to Care survey, the Workstream has launched Global PH Consult – a free online service supporting discussion and shared learning around complex PH cases.

Clinicians worldwide can submit an anonymised current or past case for consideration. Selected cases are matched with a tailored panel of PH specialists and discussed during a live 60-minute webinar. The service is open to clinicians globally, with a primary focus on supporting those in low- and middle-income countries, where access to specialist PH discussion may be more limited.

Global PH Consult aims to:

• improve access to specialist perspectives
• support discussion around complex PH cases
• connect clinicians across different healthcare settings
• build a growing online library of recorded case discussions

Find out more

Events

Upcoming

• Satellite Meeting at PVRI 2027 Bangkok
  PVRI’s IDDI Workstreams will come together for satellite sessions at PVRI 2027 Bangkok on Wednesday 27 January 2027, 08:30–15:00. Join us for focused discussion, shared learning, and collaboration across key areas of PH research and care. The satellite sessions are open to all PVRI 2027 delegates and can be selected when registering for the Congress.
  Explore the full programme

Publications

• Prisco, S. Z., Kantorovich, A., Liu, Y., Sahay, S., Bernardo, R., et al. (2026) ‘Global resource disparities between pulmonary hypertension centers: Results from the international survey by the PVRI IDDI Access to Care Workstream’. Pulmonary Circulation, 16(1), e70229

If you’re interested in joining this Workstream and helping to shape strategies that enhance global access to PH care, please get in touch.