The newest addition to the IDDI, this Workstream has hit the ground running! Since its inaugural meeting in June 2023, it has been addressing global access to transplant across different allocation systems and transplant programmes.
The Workstream’s membership includes representatives from Australia, Europe and the United States. Together, they’ve identified the key issues in LTX using a Delphi consensus process that was presented at PVRI 2024 London, and an update was presented at WSPHA in summer 2024. The group has also produced two manuscripts on peri- and post-operative issues in transplantation.
Our Regional Task Forces don't yet have global coverage. If you're interested in starting one, please contact us.
2025–26 IDDI Workstream & Task Forces Report
PVRI’s latest report highlights how global IDDI Workstreams and Task Forces are accelerating progress in pulmonary hypertension research, care, and innovation. Discover key achievements from across regions and specialties.
Interested in accessing global data on PH patient experience? Almost 4,000 patients and carers across 85 countries completed our PH Global Patient Survey (PHGPS). The data covers all PH groups and every stage of the patient journey — from diagnostic tests and timelines to treatments, genetic testing, financial pressures, hospital visits, research participation, quality of life, telemedicine, PROMs, and self-monitoring through digital tools.
The findings have the potential to improve patient care, guide future research and help us address unmet needs.
