The newest addition to the IDDI, this Workstream has hit the ground running! Since its inaugural meeting in June 2023, it has been addressing global access to transplant across different allocation systems and transplant programmes.
The Workstream’s membership includes representatives from Australia, Europe and the United States. Together, they’ve identified the key issues in LTX using a Delphi consensus process that was presented at PVRI 2024 London, and an update was presented at WSPHA in summer 2024.
Current projects
The Workstream is currently advancing several projects to improve understanding of, and access to, lung transplantation for people with PH:
Clinician survey: exploring PH clinicians’ views on lung transplantation
Patient survey: exploring patient experiences, concerns, and information needs
PH-ILD Delphi consensus: developing expert agreement on lung transplantation in PH-ILD
Clinical guidance: State-of-Art Review articles on pre- and peri-operative aspects of lung transplantation for PH
Clinician webinar: planning a joint webinar with the Pulmonary Hypertension Association
Satellite Meeting at PVRI 2027 Bangkok PVRI’s IDDI Workstreams will come together for satellite sessions at PVRI 2027 Bangkok on Wednesday 27 January 2027, 08:30–15:00. Join us for focused discussion, shared learning, and collaboration across key areas of PH research and care. The satellite sessions are open to all PVRI 2027 delegates and can be selected when registering for the Congress. Explore the full programme
Our Regional Task Forces don't yet have global coverage. If you're interested in starting one, please contact us.
Interested in accessing global data on PH patient experience? Almost 4,000 patients and carers from 90 countries took part in the Pulmonary Hypertension Global Patient Survey (PHGPS), sharing insights across all PH groups and every stage of the patient journey.
PVRI’s latest report highlights how global IDDI Workstreams and Task Forces are accelerating progress in pulmonary hypertension research, care, and innovation. Discover key achievements from across regions and specialties.
