The report brings together updates from PVRI’s Innovative Drug Development Initiative (IDDI) Workstreams, alongside regional, disease, and specialty Task Forces working across diverse healthcare settings worldwide. Together, these groups connect clinicians, researchers, patients, industry partners, and regulators to tackle shared challenges in PH.
Across 2025–2026, IDDI Workstreams advanced work in areas including access to care, lung transplantation, new technologies, paediatric trial design, patient engagement, real-world evidence, and PH associated with chronic lung disease. Many groups published peer-reviewed research, delivered webinars and scientific meetings, and laid the groundwork for new consensus and guidance.
PVRI’s Regional, Disease, and Specialty Task Forces continue to address region-specific priorities and focused areas of PH research and care, supporting education, early diagnosis, guideline development, and capacity building worldwide.
IDDI Workstreams
Access to Care
Lung Transplantation in PH
New Modalities & Technologies
Paediatric Clinical Trial Design & Endpoints
Patient Engagement & Empowerment
PH Group III
Real World Evidence & Data
Regional Task Forces
Central Asia
China
India
Latin America
Saudi Association for PH
Sri Lanka
Disease and Specialty Task Forces
Exercise
High Altitude
Imaging
Infection in PH
Paediatric & Congenital Heart Disease
PAH-ICON (Genetics)
PH Global Patient Survey
Women’s Health
The report reflects PVRI’s commitment to collaboration as a driver of impact — bringing global expertise together to improve understanding, research, and care for people living with PH.
