Pulmonary Hypertension Global Patient Survey (PH GPS)

PH GPS banner

The PH GPS is the first global survey to assess the impacts of PH on patients and their lived experiences. Patients' and carers' participation in this survey plays a pivotal role in shaping future research and enhancing healthcare to benefit patients on a global scale. If possible, please complete the survey in your native language and do not complete it more than once. 

Let's hear from our patient advocates 

"I was diagnosed 15 years ago. I completed the survey as it will help to improve the care that PH patients experience from across the world." 
Tess Patient, United Kingdom 

"I am so delighted that we now have a global survey which gives us meaningful and detailed insights into how PH is affecting patients and their families around the globe – a good look at the patients' perspective which will help improve understandings of how to care for patients across the world. Thank you so much to all the patients and their families for taking the time and care to participate." 
Gabi Lowe Founder and Director of The Jenna Lowe Trust, South Africa 

"Conducting a worldwide survey on the effects of pulmonary hypertension on patients' daily lives and mental well-being is a crucial step towards shedding light on their struggles, needs and aspirations, fostering understanding and empathy and driving initiatives for better care and support." 
Pisana Ferrari Patient advocate, Italy

If you have any questions, please contact us


Thank you for contributing to our vision to improve worldwide patient experience.

Frequently asked questions

The survey is designed for patients who live with all types of pulmonary hypertension but can be completed by a family member or caregiver on the behalf of the patient. If the patient is below 16 years of age, the survey must be completed by a parent or guardian. Patients completing this questionnaire will be instrumental in directing future research to improve care and outcomes for patients globally. 

The PH GPS has been designed to help improve global understandings of how PH affects the lives of patients and in what ways PH care needs to be improved. It has been written by a multidisciplinary panel of PH specialists and patient group advocates from the Pulmonary Hypertension Associations of Europe, United States, United Kingdom and South Africa. It was coordinated by the Pulmonary Vascular Research Institute's (PVRI) Patient Engagement & Empowerment Workstream and endorsed by ERN-Lung.

All data from the PH GPS will be anonymised when used in academic publication and presentation. Please see the Data Privacy Notices for more information. 

This survey consists of three sections with each section taking approximately 10 minutes to complete and we would be grateful if you can finish all three parts.