From Data to Action: Exploring the PHGPS Data Dashboard for Patient Associations
Hosted by the PVRI PHGPS Task Force, PHA USA, and PHA Europe, this webinar explored how patient associations can use our PHGPS Data Dashboard to support advocacy, education, and planning in their own communities.
The Pulmonary Hypertension Global Patient Survey (PHGPS) captured the experiences of nearly 4,000 patients and carers across 90 countries. The dashboard makes key findings from the survey easier to explore, with filters for region, diagnosis classification, respondent type, and gender.
In this session, our speakers looked at:
- the purpose of PHGPS and progress since Phase 1
- how patient associations contributed to the survey
- the impact of PHGPS so far, including publications and the 10 calls to action
- how to access and navigate our PHGPS Data Dashboard
- practical ways to use the findings locally
- opportunities to shape and support PHGPS Phase 2
This webinar was run live on 13 August 2026.
More from IDDI Workstream and Task Force Learning
Our IDDI Workstreams & Task Forces are actively finding practical solutions to the key challenges facing Pulmonary Hypertension (PH) physicians, academics, industry, and regulators; raising awareness of Pulmonary Vascular Disease (PVD); and addressing key challenges in its causes, effects, and treatment.