History of the PVRI: Our efforts so far
The PVRI united many of its early members to publish the first Textbook of Pulmonary Vascular Disease. We have held 14 international scientific meetings, have established nine Regional Task Forces and seven Disease & Speciality Task Forces, who raise awareness of PVD throughout the world and advance our understanding of PVD.
The PVRI Paediatric Task Force introduced the first Functional Classification of PVDs in Children, which has shaped the diagnoses and management of the disease globally.
We have also developed an interactive e-learning course on PVD, the PVRI Digital Clinic, which is aimed at specialists who would like to learn more about the diagnosis and management of pulmonary hypertension. The PVRI Digital Clinic can be accessed by members.
We rarely have the time to stop and look back at what we have achieved, but it is important to remember how far the work of our members has taken us.
- Hosted the PVRI 14th Annual World Congress in Lima, Peru, which was attended by over 330 international delegates from 60 countries with representatives from most of the South American continent.
- 1st International Symposium of Infection and Pulmonary Vascular Diseases led by our President Emeritus Ghazwan Butrous, and the 2nd International Consortium for Genetic Studies in PAH led by Nick Morrell.
- Transformed the Boston Drug Symposium into a virtual meeting, attracting over 330 delegates.
- Received over 110 abstract submissions in advance of the PVRI2021 digital webinar series
- IDDI Task Force published a special collection in Pulmonary Circulation and appointed new leadership, with Sylvia Nikkho, Ray Benza and Mark Toshner agreeing to be at the helm and shape IDDI future activities
- Received over 345 submissions to the Pulmonary Circulation journal during 2020
- Over 10,000 data entries now fully implemented on GoDeep, the PVRI’s newly launched deep phenotyping global registry on PH
- Hosted the PVRI 13th Annual World Congress in Barcelona, which attracted 475 delegates from 39 countries, and the PVRI Drug Discovery & Development Symposium in Paris, with over 120 delegates, including 67 industry representatives.
- Awarded over 50 educational grants to our members worth over £50,000 in 2018/19.
- Sponsored or supported international scientific meetings in Spain, Egypt, Germany; Bahrain, Italy, India; France, Ukraine and the USA – reaching out to over 3,000 delegates.
- Increased industry participation in the PVRI Roundtable to 12 participating pharmaceutical companies.
- Developed Phase 2 of the PVRI Digital Clinic course, with 12 fully completed patient cases online.
- Published 100 articles in Pulmonary Circulation in 2019.
- Expanded the PVRI network to include 6,300 professionals in 103 different countries.
- Established the PVRI Global Registry Initiative including, GoDeep, GoGlobal and Global Health, to measure the burden of the disease.
- Secured a substantial 5-year grant from the Cardiovascular Medical Research and Education Fund (CMREF) in the USA, stabilising the PVRI's future and paving the way for growth.
- Appointed Werner Seeger, esteemed PVRI member and senior leader in the field, as PVRI President-Elect.
PVRI 2019 Film
The PVRI 2019 film was screened at our Annual World Congress in Barcelona, 2019.
- Hosted the PVRI 12th Annual World Congress in Singapore, which attracted 240 delegates from 32 countries, and the PVRI Drug Discovery & Development Symposium in Bethesda, USA with over 120 delegates, including 18 FDA representatives.
- Awarded 37 educational grants to our members worth over £50,000.
- Held our biggest Annual World Congress in Miami with over 300 delegates.
- Sponsored international scientific meetings in the USA, Chile and Ukraine; India, Singapore, Dubai and the UK, and supported meetings in France, Australia and Paraguay, reaching out to over 1,500 delegates.
- Increased the Impact Factor of our journal Pulmonary Circulation to 2.283.
- Increased participation from industry in the PVRI roundtable with 11 participating pharmaceutical companies.
- Raised a total of £200k in sponsorship from Merck and GSK to develop Phase 2 of our e-learning course, the PVRI Digital Clinic.
- Published an article in The Lancet Respiratory Medicine Journal on the global prevalence of pulmonary hypertension.
- Became a member of major global health organisations, including the World Health Organisation (WHO), the Non-Communicable Disease Alliance (NCDA) and the World Heart Federation (WHF).
Developed the PVRI Business Plan 2018-2027, mapping our strategy for the future.
PVRI 2018 Film
The PVRI 2018 film was screened at our Annual World Congress in Singapore, 2018.
- Invested £200,000 into new BMPR2 research in collaboration with The Dinosaur Trust.
- Launched the PVRI Fellowship Grants worth £100,000.
- Awarded 35 educational grants to our members worth over £50,000.
- Held our biggest Annual World Congress in Miami with over 300 delegates.
- Sponsored international scientific meetings in the UK, USA and Cuba; Italy, Germany, Dubai; Malaysia, China, and Argentina – reaching out to 1,250 delegates.
- Developed Phase 1 of the ‘PVRI Digital Clinic’, an e-learning tool for clinicians to better diagnose and manage pulmonary vascular disease in their patients.
- Held numerous fundraising events to raise awareness of pulmonary disease and surrounding pulmonary hypertension symptoms.
PVRI 2017 Film
The PVRI 2017 film was screened at our Annual World Congress in Miami, 2017.
- 10th Annual World Congress on PVD held in Rome, Italy. 223 delegates from 28 different countries.
- New PVRI website launched in January 2016, with 245,311 site visits recorded during the year.
- Homepage video viewed over 13,000 times.
- Third Annual Drug Discovery & Development Symposium held in Bethesda, USA. 112 attendees.
- National Symposia on PVD held in Europe, USA, Bolivia; India, Jordan, Central Asia and Malaysia.
- High-Altitude meeting held in Kyrgyzstan, Central Asia.
- Development started for the PVRI e-learning course on pulmonary vascular disease.
- Memorandum of agreement signed with The Dinosaur Trust – a pulmonary hypertension charity.
PVRI 2016 Film
The PVRI 2016 film was screened at our Annual World Congress in Rome, 2016.
- 8th Annual World Congress on pulmonary vascular disease held in Guangzhou, China. 700 attendees.
- Full time Marketing Officer recruited to develop new joint PVRI & Pulmonary Circulation (PC) website.
- 2nd Annual Drug Discovery & Development Symposium held in London, UK. 80 attendees.
- Master Class on PVD held in Central Asia.
- Plans underway to develop an online ‘Diploma Course’ on pulmonary vascular disease.
- 7th Scientific Meeting held in Bad Nauheim, Germany. 400 attendees.
- Full-time Chief Executive recruited. Stephanie Barwick joins PVRI in the UK in April 2014.
- 1st Summer Symposium on Drug Discovery & Development with Food & Drug Administration (FDA) held in Bethesda, USA. 100 attendees.
- Cardiovascular Medical Research and Education Fund (CMREF) grant received for a feasibility study to develop an online course on pulmonary vascular disease.
- PVRI Committee for Young Clinicians & Scientists (CYCS) publishes first issue of the PVRI Chronicle, the second official non-peer reviewed in-house publication of the PVRI.
- Scientific Meeting held in Istanbul, Turkey. 200 people attend.
- Cardiovascular Medical Research and Education Fund (CMREF) five-year grant received.
- First PVRI Get-together at the American Thoracic Society.
- 6th Scientific Meeting held in Cape Town, South Africa. 150 people attend.
- The PVRI’s fifth AGM is held in Panama City, Panama.
- PVRI publishes the first issue of quarterly peer-reviewed medical journal Pulmonary Circulation (PC), which is indexed in PubMed after only two issues.
- The Paediatric Task Force introduces the first Functional Classification of stages of pulmonary hypertension and PVD in children at the fifth annual PVRI meeting.
- Pulmonary Circulation (PC) team employs first full-time paid member of staff in the Chicago office.
- The Pan-African Pulmonary Hypertension Cohort Registry (PAPUCO) initiative is supported via the PVRI South Africa & Sub-Saharan Task Force.
- 4th official PVRI Annual General Meeting (AGM) takes place in Lisbon, Portugal.
- First paid member of staff, Nikki Krol, recruited to join the PVRI in the UK as Executive Administrator and Editorial Assistant.
- The PVRI Sub-Saharan Africa Task Force holds its first meeting.
- 3rd Annual General Meeting (AGM) and second Scientific Workshops and Debates take place in Mexico City, Mexico.
- London hosts the first official Board of Directors meeting.
- PVRI organises a Get-Together social event during the American Thoracic Society (ATS) meeting in San Diego.
- PVRI Review, the first official non-peer-reviewed PVRI publication, launches its inaugural issue in January 2009.
- 2nd PVRI Annual General Meeting and first Scientific Workshops are held in Marbella.
- Dr Chen Wang, co-leader of the PVRI China Task Force, starts a PVRI China Centre at his Beijing Hospital.
- The first PVRI China meeting takes place in Xian in July and continues on a yearly basis to this day.
- PVRI India Task Force is established in Cochin in November.
- PVRI webinars take off under the leadership of Dr Antonio Lopes.
- 1st Annual General Meeting in Malta held with 25 attendees.
- First Task Forces established.
- Established a Board of Directors & Trustees
- Registered as an official charity in the UK and USA.
- PVRI Eastern Mediterranean Task Force held its first meeting in Dubai jointly with the Saudi Association for Pulmonary Hypertension (SAPH).
- Initial planning meeting held at Heathrow, UK, between main founders, Ghazwan Butrous, Stuart Rich, Martin Wilkins and Nick Morrell, as well as Evangelos Michelakis, Marc Semigran, and Fritz Grimminger.
- Pulmonary Vascular Research Institute founded.