Inclusion of paediatric patients in GoDeep Registry

Presented at PVRI 2026 Congress by Anne Hilgendorff, University Medicine, Carl von Ossietzky Universität Oldenburg & Megan Griffith, University of Texas Southwestern

Summary

The PVRI Go Deep Registry seeks to expand its reach within paediatric populations. It faces challenges such as time zone differences, data ownership issues, and the necessity for customised parameters. By merging anonymised data and overcoming regulatory hurdles, the registry aims to improve health outcomes. A task force will redefine entry criteria and promote collaboration among various registries, encouraging active participation from the paediatric community.

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