Keynote III: TBX4life – the role model of a global, international patient initiative & research network

Presented at PVRI 2026 Congress by Eric Austin, Vanderbilt University Medical Center

Summary

A a case study of a newborn with respiratory distress, detailing the medical evaluations and treatments in the NICU. The infant's condition includes a patent ductus arteriosus, and the narrative highlights the importance of thorough assessments and teamwork in pediatric care. The discussion also emphasises collaboration in genetic research, community support, and fundraising efforts to enhance the lives of families affected by genetic conditions.

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